Thursday, May 31, 2018

I Do Not Understand How The Left Can Be So Consumed By Hate Over This Touching Moment

As President Trump signed the "Right to Try Act" into law Wednesday afternoon a little boy, 8-year-old Jordan McLinn, was by his side.
Jordan suffers from Duchenne Muscular Dystrophy, a terminal degenerative genetic disease.  DMD is characterized by progressive muscle degeneration and weakness appearing in patients as early as age 3 first affecting the muscles of the hips, pelvic area, thighs and shoulders and later the skeletal (voluntary) muscles in the arms, legs and trunk. By the early teens, the heart and respiratory muscles also are affected.
Children afflicted with DMD are likely to be wheelchair-bound by the age of 12. Life expectancy was until recently very short.  Many do not survive beyond their teens.
The insidiousness of the disease is that due to a mutation in the dystrophin gene, the body stops making the protein that holds muscles together.  Over time, all of the muscles degenerate. Finally, the disease causes breathing complications and destroys the heart.
Supporters say the legislation signed by President Trump Wednesday could help McLinn get access to experimental drugs and treatments not yet approved by the Food and Drug Administration (FDA).
The President was a vocal supporter of efforts to gain access to experimental treatments while on the campaign trail in 2016 and in his State of the Union address he called upon Congress to pass the bill saying, “patients who are terminally ill should have access to experimental treatment immediately” and “should not have to go from country to country to seek a cure”.
The new Right to Try act allows patients with life-threatening diseases to bypass the FDA’s application process for “compassionate use” of experimental drugs. Patients seeking access to “investigational drugs” now need only the approval of their physician and the drug manufacturer.
The new bill protects doctors and companies from the legal risks of allowing unapproved treatments unless they intentionally harm a patient. The policy that patients must have exhausted all other approved treatments and clinical trial options still remains.
Little Jordan has dreamed for all of his short life about being a firefighter when he grows up. He likely will not live long enough to realize his dream. 

The fury of #theresistance is bottomless.  They are angry at Americans for electing Donald Trump as President and are outraged by anyone who supports him.  They have not yet found a way to quell their anger and each day brings with it a new reason to stoke the fire.  The rage has actually diminished their ability to be kind.  They can’t put aside their political differences even for this sweet moment:
Posted by at
Labels: , , , ,

No comments:

Post a Comment

Please scribble on my walls otherwise how will I know what you think, but please don’t try spamming me or you’ll earn a quick trip to the spam filter where you will remain—cold, frightened and all alone.

Subscribe to: Post Comments (Atom)